For those subjects providing permission, instructions on how to submit samples and accompanying information are provided at the NINDS Human Genetics Repository (at Coriell) website. Links to the NINDS Human Genetics Repository (at Coriell) website are provided below. Instructions specific to PD-DOC are included on the links below and in the Operations Manual for the CORE Data Set.
Thus, for most subjects in the PD-DOC Database, DNA is available from NINDS Human Genetics Repository (Coriell) for study in conjunction with the data stored in the PD-DOC Database. In some cases Linked Databases or Databases for Sharing may also have DNA available from NINDS Human Genetics Repository (at Coriell) for study in conjunction with their data.
For further information about NINDS Human Genetics Repository (at Coriell) and how to submit blood samples or request DNA samples visit the following web links:
Description of the NINDS Human Genetics Repository (at Coriell)
Submitting Blood Samples
Submitters Guide to QUEUE
Frequently Asked Questions
Sites should include model consent language for submitting samples to the NINDS Human Genetics Repository (at Coriell) in their informed consent documents.
NINDS Collection - Model Informed Consent
Part of the agreement when banking samples, withdrawing samples, and using SNP or clinical data from the NINDS Repository is that the researcher will acknowledge the NINDS Repository in publications when appropriate.
Suggested language for acknowledgement is posted here:
http://ccr.coriell.org/Sections/Collections/NINDS/ackGuidelines.aspx?PgId=349&coll=ND
Publications associated with the Repository are posted here:
http://ccr.coriell.org/Sections/Collections/NINDS/Publns.aspx?PgId=490&coll=ND