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Tuesday, March 09, 2010 About PD-DOC » Policies » Subject Confidentiality Register  Login
 Subject Confidentiality Policy

Individual identifiers will be removed from the data released from the PD-DOC. Data collected by the PD-DOC cannot be used for any purpose other than medical research. Any effort to determine the identity of any reported subjects is prohibited by law. Unauthorized disclosure of confidential information is subject to penalty under Title IX of the Public Health Service Act, 42 U.S.C. 299, Section 924(d).

Therefore in accordance with the above referenced Federal Statute, it is understood that:

  • No one is to use the data in the PD-DOC Database in any way except for statistical reporting and analysis.
  • If the identity of any person should be discovered inadvertently, then (a) no use will be made of this knowledge, (b) the PD-DOC will be advised of this incident, (c) the information that would identify any individual will be safeguarded or destroyed, as requested by the PD-DOC, and (d) no one else will be informed of the discovered identity.
  • No one will attempt to link PD-DOC data with individually identifiable records from any other data sets.

By using PD-DOC data you signify your agreement to comply with the above stated statutorily based requirements.



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