At this time, the individuals who are approved for submitting data to the PD-DOC Database are investigators at NINDS-supported Morris K. Udall Centers of Excellence in Parkinson’s Disease Research (Udall Centers) and investigators of the Parkinson Study Group (PSG) who are participating in the PostCEPT study. Additional submitters will be invited in the future.
The following documentation is provided for each study contributing to the PD-DOC Database:
- Protocol Synopsis
- Schedule of Activities
- Site's Informed Consent (not to be posted)
- Contact Information (not to be posted)
- Electronic links to published papers
- NINDS Human Genetics Repository (at Coriell) Dataset containing study subject and the matching de-identified Coriell NINDS IDs
- Lay description of the study