What is the NINDS Repository for Human Gene Discovery?
The National Institute of Neurological Disorders and Stroke (NINDS) Repository for Human Gene Discovery is funded by NINDS as a contract at Coriell Cell Repositories (CCR). The repository receives, stores, and standardizes the collection of clinical data and DNA for genetics research in neurological diseases.

What disease categories are being collected?
The diseases to be collected into the repository currently include Parkinson's disease, Stroke, Epilepsy, as well as Motor Neuron diseases. In future years, additional diseases may be included.

Sample withdrawal

Who is eligible to withdraw samples from the repository?
All samples in the repository, which have completed the requisite grace period, will be available publicly. Those who have submitted samples will have access at markedly reduced costs. Samples which are publicly available can be found in the NINDS Repository Catalog.

What are the costs of withdrawal?
There will be a nominal fee for submitting investigators to withdraw samples. For all other withdrawers, a fee scale will exist which will vary depending on the affiliation of the withdrawer (academic institution versus industry user, NIH funded grantee versus other, sample series type to be withdrawn, etc). This fee scale may be subject to change: fees will be applied based on what is posted at the catalog site. See the price list on the website below for more information.

NINDS Human Genetics Resource Center (at Coriell) website